The 12th edition of this International Rare Disease Day will take place on February 28, 2019.
This day brings together millions of concerned and committed people; patients, families, social workers, health professionals, policy makers and the general public. Led by patients themselves, it was launched in 2008 by EURORDIS and the Council of National Alliances.
This year's theme is "Bridging health and social care" or "Living with a rare disease".
The 12th edition of Rare Disease Day will focus on bridging the gaps in coordination between medical, social and support services to address the challenges that people living with rare diseases and their families around the world face every day.
While you wait to see the 2019 campaign, you can watch our video " Living with a Rare Disease "and go to the Eurordis website to discover the 8 ways to get involved.
Discover the press release by clicking here.