by BaptisteCrestey | June 9, 2022 | News
We are happy to invite you to take part in a workshop addressing "Ethics and regulatory considerations for ERN Data Access Committee members". This workshop is jointly organized by ERICA and EJP RD and will take place online on 30th June from 10 am to 12:30 pm. It...
by BaptisteCrestey | June 8, 2022 | News
Rare Disease Foundation & Alnylam Pharmaceuticals Award At our Annual Scientific Symposium we presented the Alnylam Rare Disease Research Award to Dr. Christine Labreze, University Hospital of Bordeaux for her project entitled: "RNA approach to the treatment of rare diseases".
by BaptisteCrestey | June 8, 2022 | News
Congratulations to our President Jean-Louis Mandel winner of the Kavli 2022 Prize! The Norwegian Academy of Sciences and Letters announced on June 1st the winners of the prestigious Kavli 2022 Prize in the fields of astrophysics, physics, biology and...
by BaptisteCrestey | June 3, 2022 | News
RARE DISEASE AND PAIN AWARD Rare Disease Foundation & APICIL Foundation On the occasion of our Annual Scientific Symposium, we had the great honor of awarding the Rare Disease and Pain Award to Professor Nicolas PENEL, Oscar Center...
by BaptisteCrestey | June 3, 2022 | News
In order to support research on Cerebellar Ataxias, the Association Connaître les Syndromes Cérébelleux (C.S.C.) will award in 2022, four grants to research teams, aiming at improving physiological knowledge and perspectives...
