NEWS AND EVENTS
Blog
Progressive Supranuclear Palsy
A first day of information on the rare neurodegenerative disease: Progressive Supranuclear Palsy (also called "Steele's disease")...
Departure of Professor Marc Tardieu
The Board of Directors of the Rare Disease Foundation took note, at its exceptional meeting on July 5, 2016, of the decision of the...
"RespirH@cktion" and the Rare Disease Foundation
The first European Hakathon dedicated to respiratory pathologies "RespirH@cktion" in partnership with the Rare Diseases Foundation will take place this...
A new gene discovered: congenital myasthenia syndrome
Discovery of a new gene for congenital myasthenic syndrome (CMS)
Death of Mr. Alain Hériaud
It is with great sadness that we learn of the death of Mr. Alain Hériaud.
Groupama Foundation - Innovation Award 2016
The Groupama Health Foundation launches its call for projects for the 2016 Social Innovation Award.
DIU 'Rare diseases: from research to treatment'.
The 2016-2017 session of the IUD "Rare diseases: from research to treatment" is opened in partnership with 5 Universities.
Fronto-Temporal Lobar Degeneration Day
The second edition of the World Day of Fronto-Temporal Degeneration in France, organized by the association France-DFT and the Center of...
The Foundation publishes its 2015 activity report
The Foundation publishes its activity report for the year 2015.
Announcement of a 3rd rare disease plan
After Marisol Touraine's announcement, the Plateforme Maladies Rares reminds us of the two essential conditions for the success of this plan.
The new Filnemus website
[The new website of the neuromuscular network, Filnemus, is online.