NEWS AND EVENTS
Blog
Interview with Dr. Nathalie Cartier
Dr. Nathalie Cartier, Director of the Biotherapy Group, INSERM UMR 1169 and Vice President of the Scientific Council of the Rare Diseases Foundation...
Telethon, top start!
During the 30 hours of the Telethon, many activities are organized everywhere in France and this year, 100 cities are mobilized to carry out a...
The 3rd IRDiRC Conference
The third conference of the International Rare Disease Research Consortium (IRDiRC) will take place on February 8-9, 2017, in Paris.
DU of Autoinflammatory Diseases
The reference center for rare auto-inflammatory diseases CEREMAI under the aegis of the "Filière de santé des Maladies auto-immunes et...
Testimony of Pr Jean-Louis Mandel
The role and perspectives of the Rare Diseases Foundation by Pr Jean-Louis Mandel, Honorary Professor of Human Genetics at the Collège de...
17th Walk for Rare Diseases
The 17th Walk for Rare Diseases organized by the Rare Disease Alliance will take place this Saturday, December 3, 2016.
Videos of the SHS Colloquium
The videos of the different sessions of the Colloquium Research in Human and Social Sciences in Rare Diseases are online on the website...
Call for projects 2016 - PSP France
The PSP France Association is launching a call for projects with a grant of 30,000 euros to a laboratory for a clinical research project on...
D.I.U. rare diseases: from research to treatment
The 2016-2017 session of the D.I.U. rare diseases: from research to treatment began on Monday, November 21, 2016 in Lyon.
Call for CRMR labelling projects
3rd Rare Disease Plan: Marisol TOURAINE and Thierry MANDON launch a new procedure for the labeling of centers of reference
Guide for the RHU wave 3 PAA
Feedback and presentation of the 3rd edition of the RHU3 call for projects
Breakfast "Scleroderma and professional difficulties
A breakfast meeting/debate on "Scleroderma and professional difficulties" will be held on Wednesday, December 14, from 8:30 to 10:30 a.m., at the ISTNF...