NEWS AND EVENTS
Blog
The new government
The Rare Diseases Foundation would like to congratulate Professor Agnès Buzyn on her appointment as Minister of Solidarity and Health and Mrs....
#3 - Interview with Dr Delphine Meynard
Dr Delphine Meynard - Researcher at the Institute of Digestive Health Research - INSERM - talks about the role of the Rare Disease Foundation. This...
Interview with Laurence Tiennot-Herment, President of AFM-Telethon
The Rare Diseases Foundation presents the testimony of Mrs. Laurence Tiennot-Herment, President of the AFM-Telethon (founding member of the Foundation)...
Labeling of rare disease reference centers
98 rare disease reference centers labeled in the 1st wave, in May 2017.
#2 - Interview with Ms. Marcela Gargiulo
Mrs. Marcela Gargiulo - Clinical psychologist at the Institute of Myology and Department of Genetics at the Pitié-Salpêtrière Hospital - MCU-HDR...
The start-up OT4B
OT4B is a start-up emerging from the world of patients and clinicians to develop oxytocin for the treatment of Alzheimer's syndrome.
RespirH@cktion: the 2nd edition
The 2nd edition of the Hackathon dedicated to respiratory pathologies will take place this year in Lille, on November 17 - 19, 2017.
Annual "AG - G2M" day
Filière G2M is organizing its annual "AG - G2M" day on Wednesday, July 5, 2017, at the Imagine Institute (Paris).
#2 - Video "The Rare Disease Foundation
We invite you to discover the Rare Disease Foundation in this short video, the second in the series entitled "1 min for...
Discovery of two new genes
Discovery of two new genes responsible for an ultra-rare malformative disease, the blepharo-cheilo-odontic syndrome.
Wolfram syndrome: international call for projects
Accelerate the discovery of treatments for Wolfram syndrome.
Rare Disease Thesis Award
The Foundation for Medical Research is pleased to inform you of the launch of its new 2017 call for projects: The Line Prize...