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#3 - Video "What is High Throughput Screening?"
We offer you this short video "What is high throughput screening?", the third educational film of a series entitled "1 min for...
FILNEMUS: Neuromuscular Days
FILNEMUS Filière invites you to participate in the 23rd Neuromuscular Days which will take place on September 7 and 8, 2017 at the Palais du Pharo in...
Training day by the Maladies Rares Méditerranée network
This day "Trisomy 21: I go to school, I learn, I have a job" organized by the network Maladies Rares Méditerranée will take place on...
Interview / Alexion and the Rare Disease Foundation
Mr. Jean-Philippe Annereau, Director of the Alexion R&D France Center, explains in this testimonial why Alexion supports the Fondation maladies...
The pre-program of the Rare Meetings is online
#4 - Interview with Professor Maïté Tauber
Prof. Maïté Tauber - Pediatric endocrinologist, coordinator of the Prader-Willi syndrome reference center, head of the children's unit at the University Hospital of...
"A flower in winter
The great commitment of two young high school students, Cassandre and Emma, in class of second at the Lycée Sainte Marie in Riom.
New President and Treasurer for the Rare Disease Foundation
Prof. Jean-Louis Mandel has been elected President of the Board of Directors of the Rare Diseases Foundation and Prof. Michel Goossens, Treasurer.
What is sexual inversion?
A rare and unrecognized disease, sexual inversion is the subject of new research advances.
Mobilization of the students of Inseec Bordeaux
On May 23rd, a gastronomic dinner followed by an auction of exceptional wines was held for the benefit of the Rare Diseases Foundation in...
The great commitment of the Joffre high school in Montpellier
A lunch was organized by the team of students and teachers behind the solidarity race that took place at Joffre high school in Montpellier...
A new president elected to the Foundation's Scientific Council
Dr. Nathalie Cartier-Lacave was elected President of the Scientific Council of the Rare Disease Foundation on April 5, 2017.