NEWS AND EVENTS
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SENSGENE National Day
The SENSGENE National Day will be held on Tuesday, November 7, 2017 at the Necker Children-Malades Hospital in Paris (Robert Amphitheatre...
CP of the 5th edition of the rare diseases meetings
The 5th edition of the rare disease meetings will take place at the Cité des Sciences de la Villette, Paris, on November 20 and 21, 2017. Theme of the...
New Director of the Rare Disease Foundation
The Rare Disease Foundation is pleased to announce the appointment of Professor Daniel Scherman as Director. This appointment by the...
The Foundation at the Diagonale des fous
A team of 10 runners with the famous French trailer Antoine Guillon as a sponsor will start the Diagonale des fous at the Grand...
La Vaisselle des Chefs organizes a sale to benefit Kiwanis and the Foundation
A big sale to the public of dishes, kitchen utensils and table decorations that star chefs no longer use was organized...
Sup'Biotech Conference on Rare Diseases
Sup'Biotech organizes in partnership with the Rare Diseases Foundation and the PRPA agency, an interprofessional conference entitled "Rare Diseases...
RD-Connect: an integrated platform for rare disease research
The Rare Diseases Foundation is a partner in the European project RD-Connect, an integrated platform linking databases, registries, databases of the...
Apply for the EURORDIS Summer School 2018!
In 2018, the EURORDIS Summer School for Expert Patients and Researchers will celebrate its 10th anniversary. Fifty participants will be selected to attend...
Government strengthens excellence of national network of care centers
In order to reinforce this excellence, Agnès BUZYN, Minister of Solidarity and Health, and Frédérique VIDAL, Minister of Higher Education,...
FILNEMUS Annual Day
The FILNEMUS Neuromuscular Disease Network is pleased to invite you to its annual day which will take place on Tuesday, November 7, 2017 from 9:30 a.m....
#4 - Video "What is high throughput sequencing?"
We offer this short video "What is High Throughput Sequencing?", the fourth educational film in a series called "1 min to...
Call for projects Huntington's disease
The Huntington France Association (AHF) is proposing 3 calls for projects to support French research on Huntington's disease.