NEWS AND EVENTS
Blog
Movie: Secondary data from high-throughput genome sequencing
This film was co-produced by the University Hospital Federation TRANSLAD and the Filière de Santé maladies rares Anomalies du Développement et...
Current call for projects from the Foundation for Therapeutic Innovation - Béatrice DENYS
The Foundation for Therapeutic Innovation - Béatrice Denys, under the aegis of the Foundation for Medical Research, is launching a call for proposals...
Opening of the call for MRSEI projects
Following the official publication of the 2018-20 Horizon 2020 work program calls for projects ( Health: Health, demographic change and...
The Guyenne - Occitane Commandery of the Order of Anysetiers supports the Rare Disease Foundation
During its Magistral Chapter on October 21, the Guyenne-Occitane Commandery of the International Order of Anysetiers renewed its commitment to the...
SENSGENE National Day
The SENSGENE National Day will be held on Tuesday, November 7, 2017 at the Necker Children-Malades Hospital in Paris (Robert Amphitheatre...
CP of the 5th edition of the rare diseases meetings
The 5th edition of the rare disease meetings will take place at the Cité des Sciences de la Villette, Paris, on November 20 and 21, 2017. Theme of the...
New Director of the Rare Disease Foundation
The Rare Disease Foundation is pleased to announce the appointment of Professor Daniel Scherman as Director. This appointment by the...
The Foundation at the Diagonale des fous
A team of 10 runners with the famous French trailer Antoine Guillon as a sponsor will start the Diagonale des fous at the Grand...
La Vaisselle des Chefs organizes a sale to benefit Kiwanis and the Foundation
A big sale to the public of dishes, kitchen utensils and table decorations that star chefs no longer use was organized...
Sup'Biotech Conference on Rare Diseases
Sup'Biotech organizes in partnership with the Rare Diseases Foundation and the PRPA agency, an interprofessional conference entitled "Rare Diseases...
RD-Connect: an integrated platform for rare disease research
The Rare Diseases Foundation is a partner in the European project RD-Connect, an integrated platform linking databases, registries, databases of the...
Apply for the EURORDIS Summer School 2018!
In 2018, the EURORDIS Summer School for Expert Patients and Researchers will celebrate its 10th anniversary. Fifty participants will be selected to attend...