NEWS AND EVENTS
Blog
#4 - Interview with Professor Maïté Tauber
Prof. Maïté Tauber - Pediatric endocrinologist, coordinator of the Prader-Willi syndrome reference center, head of the children's unit at the University Hospital of...
"A flower in winter
The great commitment of two young high school students, Cassandre and Emma, in class of second at the Lycée Sainte Marie in Riom.
New President and Treasurer for the Rare Disease Foundation
Prof. Jean-Louis Mandel has been elected President of the Board of Directors of the Rare Diseases Foundation and Prof. Michel Goossens, Treasurer.
What is sexual inversion?
A rare and unrecognized disease, sexual inversion is the subject of new research advances.
Mobilization of the students of Inseec Bordeaux
On May 23rd, a gastronomic dinner followed by an auction of exceptional wines was held for the benefit of the Rare Diseases Foundation in...
The great commitment of the Joffre high school in Montpellier
A lunch was organized by the team of students and teachers behind the solidarity race that took place at Joffre high school in Montpellier...
A new president elected to the Foundation's Scientific Council
Dr. Nathalie Cartier-Lacave was elected President of the Scientific Council of the Rare Disease Foundation on April 5, 2017.
The new government
The Rare Diseases Foundation would like to congratulate Professor Agnès Buzyn on her appointment as Minister of Solidarity and Health and Mrs....
#3 - Interview with Dr Delphine Meynard
Dr Delphine Meynard - Researcher at the Institute of Digestive Health Research - INSERM - talks about the role of the Rare Disease Foundation. This...
Interview with Laurence Tiennot-Herment, President of AFM-Telethon
The Rare Diseases Foundation presents the testimony of Mrs. Laurence Tiennot-Herment, President of the AFM-Telethon (founding member of the Foundation)...
Labeling of rare disease reference centers
98 rare disease reference centers labeled in the 1st wave, in May 2017.
#2 - Interview with Ms. Marcela Gargiulo
Mrs. Marcela Gargiulo - Clinical psychologist at the Institute of Myology and Department of Genetics at the Pitié-Salpêtrière Hospital - MCU-HDR...