Blog

The Kiwanis Clubs of the West-Var are launching a red coin operation to help people suffering from rare diseases and to support the...

The French Association of Ehlers-Danlos Syndromes (AFSED) is launching a call for research projects on the theme of Ehlers-Danlos Syndromes...

The Foundation is pleased to welcome its new regional manager for the South-West: Dr Emilie BONNAUD. To discover her background, click here.

The 1st MATHEC day (Autoimmune Diseases and Cell Therapy) is organized, Friday, January 19, 2018 at the Saint Louis Hospital by the team...

The new 2018 E-Rare call for projects to fund research projects addressing rare diseases is open.

Fabrice Lejeune, winner of the call for screening projects from the Rare Disease Foundation, presents his innovative research project to treat...

Going to school with a rare disease or a rare disability This video was produced by the CNSA in collaboration with the DGESCO, the rare disease networks and the...

The Foundation is pleased to welcome its new Regional Manager for the West: Ms. Gaëlle Dombu Smeets. To discover her background, click here...

The Etats Généraux de la Déficience Intellectuelle will take place at Unesco on January 11 and 12, 2018. This project is a continuation of the...

The Fondation pour la Recherche Médicale is launching a new call for projects to support interdisciplinary research in the field of health...

SATT Ouest Valorisation and the Rare Diseases Foundation have joined forces to promote the emergence and development of new technologies in the Brittany and Pays de Loire regions.

EURORDIS and more than 700 member organizations have just issued a new position paper calling for urgent change to ensure that the...