Blog

 SATT Nord is partnering with the Rare Diseases Foundation to launch its first Call for Expression of Interest (CEI) in the field of rare diseases...

For the 3 million people affected in France, research and access to treatment are a major priority. This subject will be at the heart of...

International Rare Disease Day will be held on February 28, 2018! This year's theme is the patient as actor in research. Click...

The Kiwanis Clubs of the West-Var are launching a red coin operation to help people suffering from rare diseases and to support the...

The French Association of Ehlers-Danlos Syndromes (AFSED) is launching a call for research projects on the theme of Ehlers-Danlos Syndromes...

The Foundation is pleased to welcome its new regional manager for the South-West: Dr Emilie BONNAUD. To discover her background, click here.

The 1st MATHEC day (Autoimmune Diseases and Cell Therapy) is organized, Friday, January 19, 2018 at the Saint Louis Hospital by the team...

The new 2018 E-Rare call for projects to fund research projects addressing rare diseases is open.

Fabrice Lejeune, winner of the call for screening projects from the Rare Disease Foundation, presents his innovative research project to treat...

Going to school with a rare disease or a rare disability This video was produced by the CNSA in collaboration with the DGESCO, the rare disease networks and the...

The Foundation is pleased to welcome its new Regional Manager for the West: Ms. Gaëlle Dombu Smeets. To discover her background, click here...