NEWS AND EVENTS
Blog
Sup'Biotech Conference on Rare Diseases
Sup'Biotech organizes in partnership with the Rare Diseases Foundation and the PRPA agency, an interprofessional conference entitled "Rare Diseases...
RD-Connect: an integrated platform for rare disease research
The Rare Diseases Foundation is a partner in the European project RD-Connect, an integrated platform linking databases, registries, databases of the...
Apply for the EURORDIS Summer School 2018!
In 2018, the EURORDIS Summer School for Expert Patients and Researchers will celebrate its 10th anniversary. Fifty participants will be selected to attend...
Government strengthens excellence of national network of care centers
In order to reinforce this excellence, Agnès BUZYN, Minister of Solidarity and Health, and Frédérique VIDAL, Minister of Higher Education,...
FILNEMUS Annual Day
The FILNEMUS Neuromuscular Disease Network is pleased to invite you to its annual day which will take place on Tuesday, November 7, 2017 from 9:30 a.m....
#4 - Video "What is high throughput sequencing?"
We offer this short video "What is High Throughput Sequencing?", the fourth educational film in a series called "1 min to...
Call for projects Huntington's disease
The Huntington France Association (AHF) is proposing 3 calls for projects to support French research on Huntington's disease.
DIU 'Rare diseases: from research to treatment'.
The 2017-2018 session of the IUD "Rare diseases: from research to treatment" is open in partnership with 5 Universities.
2017 edition for the UTMB challenge of the Foundation
30 runners mobilized for rare diseases will take on the Mont-Blanc, including Ludovic Dupont, Deputy Director of the Foundation.
New vision and goals for IRDiRC
The international rare disease research consortium announces its new vision and goals for 2017.
Groupama Foundation - Innovation Award 2017
For the 7th consecutive year, the Groupama Foundation is launching its call for projects "Social Innovation Awards 2017".
Systemic scleroderma and work
With more than 6 out of 10 patients affected, systemic scleroderma has a strong impact on professional activity. The possible aids for the...