NEWS AND EVENTS
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The Strategic Advisory Board on Health Industries
On the occasion of the Strategic Council for Health Industries (CSIS), the Prime Minister presented several measures to improve the quality of health care...
DIU 'Rare diseases: from research to treatment'.
The 2018-2019 session of the IUD "Rare diseases: from research to treatment" is open in partnership with 5 Universities. The training brings...
The winners of the 2018 Genomics AAP
The Rare Disease Foundation is pleased to announce the 2018 results of the call for projects 'GenOmics: high throughput sequencing and disease...
Launch of the 3rd National Plan for Rare Diseases
On the occasion of the 2nd Rare Disease Meeting, Frédérique VIDAL, Minister of Higher Education, Research and Innovation, and...
"My Brothers" in theaters on July 4, 2018!
Discover the interview of Bertrand Guerry, director of the film "My brothers" which deals with the particular relations between brothers and sisters, the...
RIMe " Research and therapeutic innovation
On June 27th, the information meeting of the members of the Alliance Maladies Rares took place with the intervention of Mrs Laurence...
A new nanodrug to treat idiopathic pulmonary fibrosis?
The team 3 "Aerosol therapy and Biotherapies for respiratory purposes" of the Centre for the Study of Respiratory Pathologies - INSERM U1100 has just been awarded...
IUD 2018-2019 "Inherited Diseases of Metabolism
The G2M field is pleased to announce the establishment of the 2018-2019 DIU "Inherited Diseases of Metabolism". This DU aims to...
#6 - Interview with Dr. Johann Böhm "Experts' words for the Rare Disease Foundation
Dr. Johann Böhm - Researcher at the IGBMC - talks about the role of the Rare Disease Foundation in funding these projects. This interview is the...
The University of Strasbourg's support for the Rare Disease Foundation
The University of Strasbourg supported the creation of the Rare Disease Foundation in 2012. Today, it has decided to renew this support.
A course for everyone
Faced with rare diseases and their many problems, the Filières de Santé Maladies Rares and Maladies Rares Info Services are launching a new...
The Kiwanis of the West Var is mobilizing!
The Kiwanis Clubs of the West-Var have launched a red coin operation to help people suffering from rare diseases and to support the...