NEWS AND EVENTS
Blog
Press conference of the actors of the Rare Diseases Platform
On February 22, 2018, the International Rare Disease Day press conference was held with the 6 stakeholders of the Rare Disease Platform...
#1- Video "What is a rare disease?"
We offer you the English version "What is a rare disease?", of our first educational video in a series entitled "1 min for...
6th call for research projects in SHS
The Rare Diseases Foundation is launching its sixth call for research projects in the humanities and social sciences in the field of rare diseases,...
AMI "Promoting rare diseases in the Hauts-de-France and Champagne-Ardenne regions
SATT Nord is partnering with the Rare Diseases Foundation to launch its first Call for Expression of Interest (CEI) in the field of rare diseases...
PRESS CONFERENCE - International Rare Disease Day
For the 3 million people affected in France, research and access to treatment are a major priority. This subject will be at the heart of...
February 28, 2018: International Rare Disease Day
International Rare Disease Day will be held on February 28, 2018! This year's theme is the patient as actor in research. Click...
#5 - "How to develop a drug?" video
We offer you this short video "How to develop a drug?", the fifth educational film in a series called "1 min to...
A Kiwanis Club Red Coin Operation
The Kiwanis Clubs of the West-Var are launching a red coin operation to help people suffering from rare diseases and to support the...
5th Call for projects of the AFSED
The French Association of Ehlers-Danlos Syndromes (AFSED) is launching a call for research projects on the theme of Ehlers-Danlos Syndromes...
Dr Emilie BONNAUD, new regional manager for the South-West
The Foundation is pleased to welcome its new regional manager for the South-West: Dr Emilie BONNAUD. To discover her background, click here.
First day MATHEC
The 1st MATHEC day (Autoimmune Diseases and Cell Therapy) is organized, Friday, January 19, 2018 at the Saint Louis Hospital by the team...
Transnational call for E-Rare projects
The new 2018 E-Rare call for projects to fund research projects addressing rare diseases is open.