Blog

On June 27th, the information meeting of the members of the Alliance Maladies Rares took place with the intervention of Mrs Laurence...

The team 3 "Aerosol therapy and Biotherapies for respiratory purposes" of the Centre for the Study of Respiratory Pathologies - INSERM U1100 has just been awarded...

The G2M field is pleased to announce the establishment of the 2018-2019 DIU "Inherited Diseases of Metabolism". This DU aims to...

The University of Strasbourg supported the creation of the Rare Disease Foundation in 2012. Today, it has decided to renew this support.

Faced with rare diseases and their many problems, the Filières de Santé Maladies Rares and Maladies Rares Info Services are launching a new...

The Kiwanis Clubs of the West-Var have launched a red coin operation to help people suffering from rare diseases and to support the...

The 22nd Congress of the France-Monaco District took place from May 18 to 21, 2018 in Aix les Bains. The Kiwanis Club through Mr. Jo Maticot, President of the...

The third edition of the Foundation's Matinales de la maladie rare "E-health: a cure for rare diseases?" took place on Thursday, May 17...

This film explains the commitment of the Kiwanis France Monaco Club and its support for the Rare Disease Foundation to accelerate research and fight against rare diseases.

ECRD stands for the European Conference on Rare Diseases and Orphan Drugs. It is the largest multi-stakeholder gathering in the field of rare diseases...