NEWS AND EVENTS
Blog
Press Conference - International Rare Disease Day
The 6 entities of the Rare Diseases Platform are organizing a Press Conference on Tuesday, February 26, 2019, on the theme "Diagnosis and Screening...
FSHD International Research Congress on Facioscapulohumeral Dystrophy
The FSH Society's International FSHD Research Conference will be held on June 19-20, 2019 in Marseille, at the Palais du Pharo. In the presence of...
MILLION STEPS: running beyond our strengths for research on rare diseases
5 enthusiastic runners, decided to give a human and solidary dimension to their sporting dream "To run together the Grand Raid of La Rochelle".
First European congress on e-health and innovation in neuromuscular diseases
On March 22 and 23, 2019, will have the first European Congress on e-health and innovation in neuromuscular diseases, organized by the University Hospital of...
Day on Rare Diseases in Pessac
The Chu de Bordeaux and the Foundation For Rare Diseases propose a day dedicated to research in the field of rare diseases. It will take place on...
Foundation's 2019 Call for Projects
The list of the Foundation's 2019 calls for projects and their respective timelines is online, here.
The new RARE Meetings 2019
The Rencontres RARE conference returns for its 6th edition, on November 5 & 6, 2019 at the Cité des sciences et de l'industrie, bringing a...
Call for applications - 1st e-health & rare diseases co-design workshop
The Rare Diseases Foundation, with the support of the IRCEM* Foundation, is pleased to announce the launch of the call for proposals.
The person in charge of research for the Foundation's associations
The Foundation is pleased to welcome its new head of research for associations: Miss Lyne Valentino. To find out more about her background,...
International Rare Disease Day, February 28, 2019
The 12th edition of this International Rare Disease Day will take place on February 28, 2019. This day brings together millions of people...
Call for GIRCI SOHO projects - Foundation For Rare Diseases
The Rare Diseases Foundation and the GIRCI SOHO (Inter-regional Group for Clinical Research and Innovation in South-Western Overseas Hospitals) have...
Pr Daniel Vasmant
The Foundation is honored to welcome Professor Daniel Vasmant, nephrologist, as a new member of its Board of Directors. To discover his...