NEWS AND EVENTS
Blog
The UTMB challenge of the Foundation
From August 27th to September 2nd, join the Rare Diseases Foundation in Chamonix for the great UTMB challenge of these 28 runners! Live and photos on Facebook...
New composition of the Foundation's Scientific Council
The Foundation is pleased to welcome new members to its Scientific Advisory Board: Prof. Marc Humbert (Pneumology, Bicêtre Hospital, Paris) and Prof...
RESEARCH DAY - Filière G2M
The rare diseases health network: Inherited Diseases of Metabolism G2M invites you to its first day dedicated to basic research,...
Hereditary metabolic diseases: European survey
Give your point of view on the needs and expectations of patients at European level by answering the questionnaire dedicated to patients,...
Groupama Foundation - Innovation Award 2019
The Rare Diseases Foundation publishes its activity report for the year 2017
In this report, you will find a description of the main missions of the Rare Diseases Foundation and the results it has achieved, the...
New call for projects "GenOmics: high throughput sequencing & rare diseases
The Rare Diseases Foundation is launching its new call for projects "GenOmics: High-Throughput Sequencing" and is supporting a key step in the development of...
The Strategic Advisory Board on Health Industries
On the occasion of the Strategic Council for Health Industries (CSIS), the Prime Minister presented several measures to improve the quality of health care...
DIU 'Rare diseases: from research to treatment'.
The 2018-2019 session of the IUD "Rare diseases: from research to treatment" is open in partnership with 5 Universities. The training brings...
The winners of the 2018 Genomics AAP
The Rare Disease Foundation is pleased to announce the 2018 results of the call for projects 'GenOmics: high throughput sequencing and disease...
Launch of the 3rd National Plan for Rare Diseases
On the occasion of the 2nd Rare Disease Meeting, Frédérique VIDAL, Minister of Higher Education, Research and Innovation, and...
"My Brothers" in theaters on July 4, 2018!
Discover the interview of Bertrand Guerry, director of the film "My brothers" which deals with the particular relations between brothers and sisters, the...