NEWS AND EVENTS
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Orphadata - Orphanet's new platform
Since 2011, Orphanet has been providing access to massive datasets from its database, for the benefit of research, via the...
Anysetiers mobilized for the Rare Diseases Foundation
During its 35th Magistral Chapter of the Commanderie des Landes, the International Order of Anysetiers Commanderie des Landes handed over a check of...
4 projects selected AMI - SATT Nord and the Foundation
The SATT Nord and the Foundation For Rare Diseases are combining their complementary expertise to promote the emergence and maturation of projects...
Kiwanis Var-Ouest : Great success of the red coin operation !
Kiwanis Var-Ouest organized a closing evening for the red coin operation to benefit research on rare diseases.
Forum of NTIC associations
The nineteenth national forum "New Information and Communication Technologies (NICT) and rare diseases" takes place on Monday 24...
Rare diseases in the age of 2.0 !
Find the first 3 E-health interviews proposed by the Rare Diseases Foundation! The "digital revolution" is also a challenge for the actors of...
Sup'Biotech's flea market to benefit the Foundation For Rare Diseases
The biotechnology engineering school in Paris, Sup'Biotech, is organizing a flea market on September 29 to support the Foundation for Diseases...
Valuation Day in Montpellier
Valorisation Day in Montpellier on September 27, 2018, "from idea to product: how to valorize your research in Health / Life Sciences?"...
The UTMB challenge of the Foundation
From August 27th to September 2nd, join the Rare Diseases Foundation in Chamonix for the great UTMB challenge of these 28 runners! Live and photos on Facebook...
New composition of the Foundation's Scientific Council
The Foundation is pleased to welcome new members to its Scientific Advisory Board: Prof. Marc Humbert (Pneumology, Bicêtre Hospital, Paris) and Prof...
RESEARCH DAY - Filière G2M
The rare diseases health network: Inherited Diseases of Metabolism G2M invites you to its first day dedicated to basic research,...
Hereditary metabolic diseases: European survey
Give your point of view on the needs and expectations of patients at European level by answering the questionnaire dedicated to patients,...