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Stormorken syndrome is a rare genetic disorder characterized by muscle weakness and conditions of the eye, skin, and...

The Rare Diseases Foundation launches its new call for research projects 'Development of experimental models of rare diseases'.

Gérard CONTE, President of the Kiwanis France Entraide Foundation (KFE) and Patrick MAUREL, in charge of the Rare Diseases project for the district...

The 6 entities of the Rare Diseases Platform are organizing a Press Conference on Tuesday, February 26, 2019, on the theme "Diagnosis and Screening...

The FSH Society's International FSHD Research Conference will be held on June 19-20, 2019 in Marseille, at the Palais du Pharo. In the presence of...

5 enthusiastic runners, decided to give a human and solidary dimension to their sporting dream "To run together the Grand Raid of La Rochelle".

On March 22 and 23, 2019, will have the first European Congress on e-health and innovation in neuromuscular diseases, organized by the University Hospital of...

The Chu de Bordeaux and the Foundation For Rare Diseases propose a day dedicated to research in the field of rare diseases. It will take place on...

The Rencontres RARE conference returns for its 6th edition, on November 5 & 6, 2019 at the Cité des sciences et de l'industrie, bringing a...

The Rare Diseases Foundation, with the support of the IRCEM* Foundation, is pleased to announce the launch of the call for proposals.

The Foundation is pleased to welcome its new head of research for associations: Miss Lyne Valentino. To find out more about her background,...