Blog

The FSH Society's International FSHD Research Conference will be held on June 19-20, 2019 in Marseille, at the Palais du Pharo. In the presence of...

5 enthusiastic runners, decided to give a human and solidary dimension to their sporting dream "To run together the Grand Raid of La Rochelle".

On March 22 and 23, 2019, will have the first European Congress on e-health and innovation in neuromuscular diseases, organized by the University Hospital of...

The Chu de Bordeaux and the Foundation For Rare Diseases propose a day dedicated to research in the field of rare diseases. It will take place on...

The Rencontres RARE conference returns for its 6th edition, on November 5 & 6, 2019 at the Cité des sciences et de l'industrie, bringing a...

The Rare Diseases Foundation, with the support of the IRCEM* Foundation, is pleased to announce the launch of the call for proposals.

The Foundation is pleased to welcome its new head of research for associations: Miss Lyne Valentino. To find out more about her background,...

The 12th edition of this International Rare Disease Day will take place on February 28, 2019. This day brings together millions of people...

The Rare Diseases Foundation and the GIRCI SOHO (Inter-regional Group for Clinical Research and Innovation in South-Western Overseas Hospitals) have...

The Foundation is honored to welcome Professor Daniel Vasmant, nephrologist, as a new member of its Board of Directors. To discover his...

The Technology Transfer Acceleration Companies AxLR and TTT and the Rare Diseases Foundation have joined forces to promote the development of...