NEWS AND EVENTS
Blog
Relabelling of rare disease health networks
The inter-channel booklet which presents the National Plans for Rare Diseases, the actors of rare diseases, and the 23 channels is updated. For...
Foundation releases 2018 activity report
In this report, you will find a description of the Foundation's main missions and the results it has achieved, as well as the projects it has supported in...
Discover our Scientific Council
Discover the portrait of Professor Francesc PALAU, member of our Scientific Council by clicking here.
Discover our Scientific Council
Discover the portrait of Professor Pierre Levy, member of our Scientific Council by clicking here.
PHILOMENE survey: help us by responding to this research program
The PHILOMENE research program aims to improve the educational outcomes and career choices of children with medical conditions...
Groupama Foundation - 2020 Social Innovation Award
The Groupama Foundation is launching its new call for projects for its 2020 Social Innovation Award. The deadline for submission of applications is 6 December...
Clinical research: an original video
The FAI2R pipeline produced an informational video in collaboration with the DéfiScience pipeline on pediatric research. The script was...
Symposium on the gene therapy revolution
The AFM-Telethon and the Health Chair of Sciences Po are organizing a symposium on September 17, 2019 at the National Assembly on the theme of "The revolution...
The Foundation's new GenOmics call for proposals
The Rare Diseases Foundation is launching its new call for projects "GenOmics: High-Throughput Sequencing" and is supporting a key step in the development of...
Mr. Yannis Hajji, Fundraising and Communication Officer
The Foundation is pleased to welcome its new Fundraising and Communication Officer: Mr. Yannis Hajji.
Survey: The French and the fight against rare diseases
Ipsos and the association ASAP FOR CHILDREN have conducted a survey, one year after the implementation of the National Plan for Rare Diseases 3, to assess the state of...
Rare Diseases" e-learning survey: Help us to better meet your expectations
EJP-RD is a multifaceted program aimed at supporting Rare Disease (RD) research in every possible way. This include funding of primary research,...