NEWS AND EVENTS
Blog
European Researchers' Night: Céline Lancelot presents her SHS project on Turner Syndrome
Impelled by the European Commission in 2005, the European Researchers' Night is a privileged occasion for scientists to talk about their work.
RARE Meetings: program and registration
Discover the program of the RARE Meetings, a privileged place of exchanges, information and discussions which will take place in Paris, at the Cité des...
DIU Rare Diseases, from research to treatment - 2019/2020
The 2019-2020 session of the IVDU "Rare Diseases: from research to treatment" is open. The training will provide cross-disciplinary knowledge...
LIVE - WEB EMISSION: Artificial intelligence and rare diseases
Find the replay of the Foundation's webcast "Artificial intelligence and rare diseases" by clicking here.
AAP of the APEHDia association
The association Pour Encourager la Recherche sur la Hernie Diaphragmatique, APEHDia launches its first call for research projects to support the development of...
Position Project Manager - CRMR - Intellectual Disability-Poly Handicap of rare causes
The activity of the Centre de Référence Maladies Rares - Intellectual Disability-Polyhandicap of rare causes - of the Necker-Enfants malades hospital is based on...
LIVE - WEB EMISSION: Artificial intelligence and rare diseases
On September 11, 2019, you can watch the Foundation's live webcast on "Artificial Intelligence and Rare Diseases", in...
Call for Projects - Implementation of expertise platforms
The DGOS publishes an information note on its 2019 call for projects for the implementation of expertise platforms in the field of...
Call for projects from the Direction Générale de l'Offre de Soins (DGOS)
The DGOS is launching a call for proposals for the production of Patient Therapeutic Education (PTE) programs for rare diseases.
Conference on Rare Diseases organized by the International Order of Anysetiers of the Commanderie des Landes
On September 1, 2019, the International Order of Anysetiers of the Landes Commandery will hold a Rare Disease Conference to...
Hopsimédia: a challenge to the km for the Foundation
Since April 1st, Hospimedia supports the Foundation For Rare Diseases. The "Hospi'Runners" accumulate the kilometers they run during their...
UTMB 2019 edition ends
The Foundation is one of the solidarity causes of the Ultra Trail du Mont Blanc. This year, 29 runners have chosen to wear a solidarity bib in order to support the...