Blog

The Rare Diseases Foundation organized a scientific symposium "The Advancement of Research in Rare Diseases" on May 7, 2019 at the Collège de...

As part of the PRS objectives for the theme "Ensuring equal access to genetic diagnosis and improving the pathway for patients with...

The second edition of the Kiwanis Var Ouest operation "Pièces rouges" ended on September 13th with the delivery of a 4200€ check...

Six projects have been selected Among them, several aim at developing new gene therapies. These include innovative strategies in the...

Impelled by the European Commission in 2005, the European Researchers' Night is a privileged occasion for scientists to talk about their work.

Discover the program of the RARE Meetings, a privileged place of exchanges, information and discussions which will take place in Paris, at the Cité des...

The 2019-2020 session of the IVDU "Rare Diseases: from research to treatment" is open. The training will provide cross-disciplinary knowledge...

Find the replay of the Foundation's webcast "Artificial intelligence and rare diseases" by clicking here.

The association Pour Encourager la Recherche sur la Hernie Diaphragmatique, APEHDia launches its first call for research projects to support the development of...

The activity of the Centre de Référence Maladies Rares - Intellectual Disability-Polyhandicap of rare causes - of the Necker-Enfants malades hospital is based on...