NEWS AND EVENTS
Blog
EJP - Online Training: Results of the rare disease community's expectations
The Rare Diseases Foundation is a partner of the European Joint programme on Rare Diseases. This...
IPMC: From donation to discovery... and drugs!
The Rare Diseases Foundation will participate in the day organized by the Institute of Molecular and Cellular Pharmacology (IPMC) on November 15...
AAP Overcoming Cystic Fibrosis
Within the framework of its 2020 Call for Scientific Projects, Vaincre la Mucoviscidose wishes to support all areas of research: fundamental...
[D-3] RARE Meetings - November 5&6, 2019
Speech by Mrs Agnès BUZYN, Minister of Solidarity and Health at the end of the morning on Tuesday 5 November 2019 The RARE Meetings Tuesday 5...
Figures on rare diseases
Created and coordinated by Inserm, the Orphanet knowledge base (which contains the largest amount of epidemiological data on the diseases of the world)...
[AAP] Medical Research Foundation
The Foundation for Medical Research is launching 3 Calls for Projects : 1) : the 2020 Environment and Health Call for Projects (Pre-application opening on 22...
Diagonale des fous: 13 runners in the Foundation's colors
BRAVO - The 13 runners of the Rare Diseases Foundation "Million Steps 3070" team have crossed the finish line of the Diagonale des fous! They are...
Video - e-health and rare diseases co-design workshop
On June 27, the first edition of the e-health and rare diseases co-design workshops took place at the Paris Biotech Santé incubator...
Videos - Scientific Symposium "Advancing Research in Rare Diseases
The Rare Diseases Foundation organized a scientific symposium "The Advancement of Research in Rare Diseases" on May 7, 2019 at the Collège de...
Rennes: Regional Rare Disease Day
As part of the PRS objectives for the theme "Ensuring equal access to genetic diagnosis and improving the pathway for patients with...
Operation "Red Pieces" of the Kiwanis Var Ouest
The second edition of the Kiwanis Var Ouest operation "Pièces rouges" ended on September 13th with the delivery of a 4200€ check...
Results of the AMI organized by the Foundation, SATT Toulouse and SATT AXLR
Six projects have been selected Among them, several aim at developing new gene therapies. These include innovative strategies in the...