NEWS AND EVENTS
Blog
Mr. Yannis Hajji, Fundraising and Communication Officer
The Foundation is pleased to welcome its new Fundraising and Communication Officer: Mr. Yannis Hajji.
Survey: The French and the fight against rare diseases
Ipsos and the association ASAP FOR CHILDREN have conducted a survey, one year after the implementation of the National Plan for Rare Diseases 3, to assess the state of...
Rare Diseases" e-learning survey: Help us to better meet your expectations
EJP-RD is a multifaceted program aimed at supporting Rare Disease (RD) research in every possible way. This include funding of primary research,...
Kiwanis renews its support for the Rare Diseases Foundation!
A national Kiwanis cause since 2015, the Rare Disease Foundation is pleased to announce the renewal of its partnership with Kiwanis...
Discover our Scientific Council
Discover the portrait of Professor Gert Matthijs, member of our Scientific Council by clicking here.
Discover our Scientific Council
Discover the portrait of Professor Marc Humbert, member of our Scientific Council by clicking here.
Video - The Rare Stars evening
Video - Relive the 2nd Edition of the charity event "Les Etoiles Rares" held at Château Pape Clément on May 23, 2019, A prestigious dinner...
Discover our Scientific Council
Discover the portrait of Professor Eric Hachulla, member of our Scientific Advisory Board and Chair of the Translational Steps Committee in...
Discover our Scientific Council
Discover the portrait of Professor Damien SANLAVILLE, member of our Scientific Council and Chair of the GenOmics Committee by clicking here.
The presentations of our conference are online
Find the presentations of the speakers at the Foundation's May 7, 2019 scientific symposium by clicking here.
The RARE Stars
The 2nd edition of the charity event "Les Étoiles Rares" on May 23, 2019 in Bordeaux was a great success with a gastronomic dinner followed by a...
Discover our Scientific Council
Discover the portrait of Professor Yves Pirson, member of our Scientific Council and Chair of the SHS Committee by clicking here.