NEWS AND EVENTS
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Groupama Foundation - 2020 Social Innovation Award
The Groupama Foundation is launching its new call for projects for its 2020 Social Innovation Award. The deadline for submission of applications is 6 December...
Clinical research: an original video
The FAI2R pipeline produced an informational video in collaboration with the DéfiScience pipeline on pediatric research. The script was...
Symposium on the gene therapy revolution
The AFM-Telethon and the Health Chair of Sciences Po are organizing a symposium on September 17, 2019 at the National Assembly on the theme of "The revolution...
The Foundation's new GenOmics call for proposals
The Rare Diseases Foundation is launching its new call for projects "GenOmics: High-Throughput Sequencing" and is supporting a key step in the development of...
Mr. Yannis Hajji, Fundraising and Communication Officer
The Foundation is pleased to welcome its new Fundraising and Communication Officer: Mr. Yannis Hajji.
Survey: The French and the fight against rare diseases
Ipsos and the association ASAP FOR CHILDREN have conducted a survey, one year after the implementation of the National Plan for Rare Diseases 3, to assess the state of...
Rare Diseases" e-learning survey: Help us to better meet your expectations
EJP-RD is a multifaceted program aimed at supporting Rare Disease (RD) research in every possible way. This include funding of primary research,...
Kiwanis renews its support for the Rare Diseases Foundation!
A national Kiwanis cause since 2015, the Rare Disease Foundation is pleased to announce the renewal of its partnership with Kiwanis...
Discover our Scientific Council
Discover the portrait of Professor Gert Matthijs, member of our Scientific Council by clicking here.
Discover our Scientific Council
Discover the portrait of Professor Marc Humbert, member of our Scientific Council by clicking here.
Video - The Rare Stars evening
Video - Relive the 2nd Edition of the charity event "Les Etoiles Rares" held at Château Pape Clément on May 23, 2019, A prestigious dinner...
Discover our Scientific Council
Discover the portrait of Professor Eric Hachulla, member of our Scientific Advisory Board and Chair of the Translational Steps Committee in...