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Call for proposals: the Ring 14 or chromosome 14 related syndromes
Ring14 International yearly solicit international research projects focused on the Ring 14 or chromosome 14 related syndromes. The projects can be...
First edition of call for proposals - Angelini for Future 2021
Angelini Pharma is an international group, leader in health care and well-being, committed to help patients, doctors and caregivers in the fight...
Conference: Rare 2030
The Rare 2030 conference was held online on February 23, 2021, co-organized by European Parliament members Frédérique Ries (Belgium) and...
Online Conference - 24 Hours of Rare
This is a virtual event that will take place from February 27 to March 5, 2021, celebrating the global rare disease community with content...
Press conference for the JIMR
Tuesday, February 16 at 9:30 a.m. - Press videoconference "Rare diseases and COVID19: an effective French model" COVID19 is a "double punishment"...
Hypergrowth syndromes: webinar on March 18
March 18, 2021, SFCPP is hosting a digital conference on hypergrowth syndromes in children on March 18, 2021 in partnership with the...
Prof. Daniel Scherman, elected Corresponding Member of the National Academy of Pharmacy
Prof. Daniel Scherman, Director of the Foundation For Rare Diseases, has been elected Corresponding Member of the French National Academy of Pharmacy, for his...
Les Cahiers d'Orphanet - Living with a rare disease in France
Les Cahiers d'Orphanet, Health Policy Series, December 2020 Living with a rare disease in France - Aids and benefits
The Credit Mutuel Ile de France, new partner of the Foundation
We are very pleased to announce the signing of a new partnership between the Crédit Mutuel Île-de-France and the Foundation For Rare Diseases...
The CIC North West's "Les Lauréats du cœur" operation
On February 9, 2021, as part of its operation "Les Lauréats du coeur"', the CIC Nord-Ouest presented a check for 21,000 euros to Dr....
International Workshop on Fragile X and Associated Diseases
On March 18 - 19, 2021, the Association Fragile X France, on the occasion of its thirtieth anniversary, is organizing an international workshop on the syndrome...
Solidarity sports challenge for all
The Rare Diseases Foundation invites you to participate in International Rare Disease Day and to support the 3 million people...