NEWS AND EVENTS
Blog
Press conference for the JIMR
Tuesday, February 16 at 9:30 a.m. - Press videoconference "Rare diseases and COVID19: an effective French model" COVID19 is a "double punishment"...
Hypergrowth syndromes: webinar on March 18
March 18, 2021, SFCPP is hosting a digital conference on hypergrowth syndromes in children on March 18, 2021 in partnership with the...
Prof. Daniel Scherman, elected Corresponding Member of the National Academy of Pharmacy
Prof. Daniel Scherman, Director of the Foundation For Rare Diseases, has been elected Corresponding Member of the French National Academy of Pharmacy, for his...
Les Cahiers d'Orphanet - Living with a rare disease in France
Les Cahiers d'Orphanet, Health Policy Series, December 2020 Living with a rare disease in France - Aids and benefits
The Credit Mutuel Ile de France, new partner of the Foundation
We are very pleased to announce the signing of a new partnership between the Crédit Mutuel Île-de-France and the Foundation For Rare Diseases...
The CIC North West's "Les Lauréats du cœur" operation
On February 9, 2021, as part of its operation "Les Lauréats du coeur"', the CIC Nord-Ouest presented a check for 21,000 euros to Dr....
International Workshop on Fragile X and Associated Diseases
On March 18 - 19, 2021, the Association Fragile X France, on the occasion of its thirtieth anniversary, is organizing an international workshop on the syndrome...
Solidarity sports challenge for all
The Rare Diseases Foundation invites you to participate in International Rare Disease Day and to support the 3 million people...
Research for the future : Dr. Fabrice Lejeune
We thank Dr. Fabrice Lejeune, winner of the 2013 Screening call for his testimony. Dr. Fabrice Lejeune, Inserm researcher at the...
The winners of the Foundation's call for projects "Identification of molecules with therapeutic potential
RARE podcast with the Rare Diseases Foundation
The channel "RARE à l'écoute" has produced a podcast "2020, an unusual year for research in rare diseases". This special episode on...
February 2, 2021: JTC2021 Webinar
An informational webinar on JTC2021 on February 2 at 3pm! The purpose of this webinar is to inform potential applicants about the...