NEWS AND EVENTS
Blog
Let's support the Telethon 21 together
As Soprano, the sponsor of the 2021 Telethon, says: "At Genethon, I saw the result of the "We're going to fight, we're not going to give up", which gave me a real kick...
Joint call for projects with the ALBI association
The Association for the Fight against Inflammatory Diseases of the Liver and the Alimentary Tract (ALBI) and the Rare Diseases Foundation (FMR) are launching a...
Salon du chocolat - Kiwanis of Montpellier
The Kiwanis Club of Montpellier is organizing a chocolate and delicacies fair to benefit the Foundation For Rare Diseases! It will be held on the 27th and 28th of...
The World Service Medal for Dr. Maurel, Ambassador of the Foundation
During the transfer of power of the Kiwanis France-Monaco District which took place in Issoire on September 24th and 25th, Dr. Patrick Maurel has...
Podcast "Objectif Santé Famille" from FE IRCEM
Through its podcast "Objectif Santé Famille", the IRCEM Foundation takes you into a world in motion. Each month, a short story is presented...
Joint PAA of the Foundation and HPN-AM France
The Foundation and HPN-AM France support research projects in Health or Human and Social Sciences on paroxysmal hemoglobinuria...
Operation "Chefs' Dishes
The operation " Vaisselle des Chefs ", a sale to the benefit of the Foundation For Rare Diseases takes place this year at the Hotel de Ville de Lyon !
Download the Letter of Intent of the PAA "proof of innovative therapeutic concepts
The AFM-Telethon and the Rare Diseases Foundation are launching a call for projects "Proof of innovative therapeutic concepts" dedicated to Health Networks...
The Grand Tombola of the Telethon 21!
On December 3 and 4, meet for the Telethon 2021. Discover today the highlights and the events planned for this 35th Telethon, in...
The videos and slides of the RARE 21 Congress are online
The videos and slides of each session of the scientific program of this 7th edition of the RARE 21 Conference are online....
Call for proposals Screening
Launch of our call for research projects 'Identification of molecules with therapeutic potential for rare diseases'. The objective of this...
A sailboat in the Foundation's colors
The company Yacht Solutions, through its director Marc Renwick, supports the cause of rare diseases and genetic research with a project...