NEWS AND EVENTS
Blog
Labeling of the first 23 European reference networks for rare diseases
The European Commission has announced the first wave of 23 European reference networks for rare diseases.
Happy Capital commits itself to the Rare Diseases Foundation
The Happy Capital platform proposes to its investors and partners to follow it in its commitment to solidarity and to make a donation to the...
The UTMB® 2017 challenge is launched
The Rare Diseases Foundation is one of the 12 solidarity causes of the UTMB® (Ultra Trail du Mont Blanc) which will take place this year from August 28 to August 3.
E-Rare - Call for proposals 2017
The ninth E-Rare Joint Call for Multilateral Research Projects in Rare Diseases (JTC2017) is open.
Call for projects launched by the association marfans
The marfans association is launching a call for projects whose funding(s) will take place from May 2017.
Interview with Dr. Nathalie Cartier
Dr. Nathalie Cartier, Director of the Biotherapy Group, INSERM UMR 1169 and Vice President of the Scientific Council of the Rare Diseases Foundation...
Telethon, top start!
During the 30 hours of the Telethon, many activities are organized everywhere in France and this year, 100 cities are mobilized to carry out a...
The 3rd IRDiRC Conference
The third conference of the International Rare Disease Research Consortium (IRDiRC) will take place on February 8-9, 2017, in Paris.
DU of Autoinflammatory Diseases
The reference center for rare auto-inflammatory diseases CEREMAI under the aegis of the "Filière de santé des Maladies auto-immunes et...
Testimony of Pr Jean-Louis Mandel
The role and perspectives of the Rare Diseases Foundation by Pr Jean-Louis Mandel, Honorary Professor of Human Genetics at the Collège de...
17th Walk for Rare Diseases
The 17th Walk for Rare Diseases organized by the Rare Disease Alliance will take place this Saturday, December 3, 2016.
Videos of the SHS Colloquium
The videos of the different sessions of the Colloquium Research in Human and Social Sciences in Rare Diseases are online on the website...