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Chups Radio, Web radio by and for patients
Chups Radio wishes to value the voice of people with neurodegenerative diseases (NDD) and their caregivers and proposes a global approach to the...
Agnès BUZYN and Frédérique VIDAL specify the orientations of a third PNMR
On the occasion of International Rare Disease Day, Agnès BUZYN, Minister of Solidarity and Health, and Frédérique VIDAL, Minister of...
#6 - "Living with a rare disease" video
We invite you to view "Living with a rare disease", the new educational film in a series entitled "1 min to understand" ....
Conference in Lyon for International Rare Disease Day
Tomorrow, February 28, a conference will be held in Lyon for the International Day of Rare Diseases at the Hôpital Femme-Mère-Enfant, Bron.
Rare Diseases: Research Challenges" Conference
Tomorrow, February 28, is International Rare Disease Day. The Rare Diseases Foundation will speak at a conference "...
Press conference of the actors of the Rare Diseases Platform
On February 22, 2018, the International Rare Disease Day press conference was held with the 6 stakeholders of the Rare Disease Platform...
#1- Video "What is a rare disease?"
We offer you the English version "What is a rare disease?", of our first educational video in a series entitled "1 min for...
6th call for research projects in SHS
The Rare Diseases Foundation is launching its sixth call for research projects in the humanities and social sciences in the field of rare diseases,...
AMI "Promoting rare diseases in the Hauts-de-France and Champagne-Ardenne regions
SATT Nord is partnering with the Rare Diseases Foundation to launch its first Call for Expression of Interest (CEI) in the field of rare diseases...
PRESS CONFERENCE - International Rare Disease Day
For the 3 million people affected in France, research and access to treatment are a major priority. This subject will be at the heart of...
February 28, 2018: International Rare Disease Day
International Rare Disease Day will be held on February 28, 2018! This year's theme is the patient as actor in research. Click...
#5 - "How to develop a drug?" video
We offer you this short video "How to develop a drug?", the fifth educational film in a series called "1 min to...