NEWS AND EVENTS
Blog
#6 - Interview with Dr. Johann Böhm "Experts' words for the Rare Disease Foundation
Dr. Johann Böhm - Researcher at the IGBMC - talks about the role of the Rare Disease Foundation in funding these projects. This interview is the...
The University of Strasbourg's support for the Rare Disease Foundation
The University of Strasbourg supported the creation of the Rare Disease Foundation in 2012. Today, it has decided to renew this support.
A course for everyone
Faced with rare diseases and their many problems, the Filières de Santé Maladies Rares and Maladies Rares Info Services are launching a new...
The Kiwanis of the West Var is mobilizing!
The Kiwanis Clubs of the West-Var have launched a red coin operation to help people suffering from rare diseases and to support the...
Kiwanis Convention 2018
The 22nd Congress of the France-Monaco District took place from May 18 to 21, 2018 in Aix les Bains. The Kiwanis Club through Mr. Jo Maticot, President of the...
The Matinales #3
The third edition of the Foundation's Matinales de la maladie rare "E-health: a cure for rare diseases?" took place on Thursday, May 17...
Kiwanis Club Support
This film explains the commitment of the Kiwanis France Monaco Club and its support for the Rare Disease Foundation to accelerate research and fight against rare diseases.
ECRD 2018 in Vienna
ECRD stands for the European Conference on Rare Diseases and Orphan Drugs. It is the largest multi-stakeholder gathering in the field of rare diseases...
#3 - Interview with Dr. Guy Lenaers
We propose you the testimony of Dr Guy Lenaers - Director of MitoLab, at the University of Angers - new video of the series "Words of experts...
First partnership agreement initiated by the Foundation's POC Club
Lysogene announces the signature of a partnership agreement with Dr. Hervé Moine, researcher at the IGBMC and SATT Conectus Alsace, in the framework of the...
Western Regional Autoimmune Disease Days
On April 12 and 13, the Western Regional Days on autoimmune diseases will be held in Angers.
Day of support at Joffre high school in Montpellier!
Today, the Joffre high school in Montpellier is mobilizing for the Rare Diseases Foundation by organizing for the third consecutive year, a...