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European policies are influenced by the priorities of their member countries. Rare diseases are featured on the agenda of the upcoming Trio of EU...

European policies are influenced by the individual priorities of member countries. A priori, rare diseases are on the agenda of the...

The Rare Diseases Foundation invites you to meet on May 31, 2022 at the Collège de France for a day of scientific exchanges around the...

Precision Medicine - a new approach to more proactive and individualized health care. It is in this spirit of possibility...

On the occasion of its 3rd 'Research and Innovation' Day, this Friday, March 11, the Filière de Santé Maladies Rares des malformations de la tête, du...

As part of the training activities proposed by EJP RD, the International Summer School on Rare Disease Registries and FAIRification of Data is...

As part of the training activities proposed by EJP RD, an international course entitled "Training for patient representatives and advocates on...

The FAIRopoly has been launched on the EJP RD website. FAIRopoly illustrates the FAIRification steps followed by the ERNs registries to make their...

On the occasion of Rare Disease Day 2022 (February 28th), the International Rare Diseases Research Consortium (IRDiRC) has released an introductory...

The next Research and Innovation Day of the Filière de Santé Maladies Rares des malformations de la tête, du cou et des dents (TETECOU)...

The symposium "ALS & Motor Neurone Diseases: what avenues for the future?" organized by france biotech will take place on March 17, 2010.

To commemorate Rare Disease Day (February 28th), the European Joint Programme on Rare Diseases (EJP RD) is proud to announce the launch of their...