In 2017, the Foundation created its Club for the valorization of research: the POC « Proof Of Concept » Club which links academic research teams with industrial partners.

This Club is a mechanism for promoting research outside of calls for proposals for the development of new treatments. It brings together industrialists wishing to strengthen their position in rare diseases.

Within this framework, the Foundation first selects sufficiently mature academic projects. It then presents them, with the agreement of the researchers and their development organization, to the industrial members of the Club. In the event of an expression of interest, it then organizes meetings between all the players under confidentiality agreements.

The Rare Diseases Foundation will launch the new edition of its POC Club on June 2, 2022.

  • Pharmaceuticals companies
  • Big, middle-sized, biotechs
  • Two sessions per year since its creation in 2017

Out of 283 projects identified by the Foundation, of which 187 were supported by its regional managers, 74 projects were presented to the POC Club with :

  • 56 connexions made
  •  75% of interest from industrials

An initial co-design partnership signed on April 6, 2018 between Lysogene and Satt Conectus on a POC carried by Dr. Hervé MOINE in the treatment of Fragile X syndrome has evolved into the signature in 2021 of an exclusive worldwide license agreement with Satt for the development and commercialization of a gene therapy drug candidate.

During its last edition, the POC Club adopted a new format (pitch webinars) that was acclaimed by all participants and will be continued in future editions.

A survey conducted among its members in December 2020 revealed that the POC Club :

  • Offers the possibility of selecting quality projects upstream thanks to its territorial coverage
  • Provides access to academic teams that are not necessarily known
  • Helps to understand industrial constraints and expectations.