Since 2017, the Foundation For Rares Diseases has been organizing a major Congress in the field of rare diseases, the ‘Rencontres RARE’.
This event is organized over two days and brings together the entire rare disease community: public decision-makers, patient representatives, health and research professionals, drug, medical device and health technology manufacturers.
The objective of these congress is to take stock of the state of research and care in this sector and to define new future ambitions in order to provide solutions for the management of these serious, chronic diseases. and disabling.
Next meeting will take place in Autumn 2023.
For more information you can visit our dedicated website (in French): www.rareparis.com