The Fondation Maladies Rares, the Plateforme Lilloise d'Expertise Maladies Rares PLEMaRa and the CHU de Lille are pleased to invite you to the Colloque Scientifique des Hauts-de-France. This is a unique opportunity to meet all the regional players in the field of...
On the occasion of the 16th International Rare Diseases Day As part of the International Rare Diseases Day, the Fondation Maladies Rares, the "Est Rare" rare diseases expertise platform, and their partners are organizing a symposium...
On the occasion of the 16th International Rare Diseases Day As part of the International Rare Diseases Day, the Fondation Maladies Rares, the "Est Rare" rare diseases expertise platform, and their partners are organizing a symposium...
The Foundation For Rare Diseases is organizing a first inter-regional scientific symposium "From research to treatment, in rare diseases" on April 9, 2021 in digital format. It will take place on the Zoom platform. The aim of the symposium is to present the...
COLLOQUIUM IN HUMAN AND SOCIAL SCIENCES Living with a rare disease Challenges of autonomy 9h00- 9h30 Welcome coffee 9h30 - 9h45 Opening - Presentation of the IRCEM Foundation - Jean-Charles Grollemund, CEO of the IRCEM Group -...