Birk-Barel mini-symposium

On behalf of patient representatives, the Foundation For Rare Diseases (FFRD) is organizing the first Birk-Barel mini-symposium, that will be held online on the 3d of December 2021, from 4pm to 7pm (Paris hour). The goal of this meeting will be to give a comprehensive update of the research activities on the Birk-Barel syndrome and to highlight the themes that need some support, stimulation and/or deployment.

Participation is free but registration is mandatory.

More informations : https://evenements-fondation-maladiesrares.org/event/birk-barel-mini-symposium/

 

Laura Benkemoun

Responsable régionale Est & Conseillère recherche auprès des associations

01 58 14 22 81