...In 2017, the French Foundation for Rare Diseases has funded 41 new excellence projects for a direct annual investment in rare disease research of... En savoir plus
Deciphering Rare Diseases
...sick people. The Foundation is the only French structure that promotes the research on the whole rare diseases. The Foundation finances, coordinates and supports... En savoir plus
Our results in 2016
With its 4 years of experience, the Foundation is pursuing and developing its actions in 2016. The Foundation is planning to deploy its scientifi... En savoir plus
Improving the patients’ life path
...sick people. The Foundation is the onvly French structure that promotes the research on the whole rare diseases. The Foundation finances, coordinates and supports... En savoir plus
Our Board of Directors
Our Board of Directors is composed of representatives of each of the 5 founding members, 8 qualified personalities and 1 representative elected by researchers.... En savoir plus
Welcome
...The French Foundation for Rare Diseases (FFRD) is a non-profit organization of scientific cooperation. Its missions are to accelerate research for all rare diseases... En savoir plus
Our team
...The French Foundation for Rare Diseases is, above all, composed of a team of professionals dedicated to supporting and funding research on the whole... En savoir plus
Our results since 2012
...funded and are carried out by players involved in research and healthcare throughout France. The investment dedicated to these 324 projects by the FFRD... En savoir plus
The Genesis
...Education and Research on 7 February 2012. It stems from the joint wish of all stakeholders involved in research and healthcare of rare diseases... En savoir plus
29.05.2018
Politique de confidentialité
...traduire notre site dans la langue de l’utilisateur (le navigateur de votre terminal renseigne cette information). Ce cookie est supprimé lorsque vous fermez votre... En savoir plus
05.07.2016
Aspects médico-réglementaires
...répétées) et du devenir du médicament dans l’organisme Phase 2: Détermination de la dose optimale en terme d’efficacité et de tolérance Phase 3: Evaluation... En savoir plus
Les filières de santé maladies rares sont des organisations qui ont pour vocation d’animer et de coordonner les actions entre les acteurs impliqués dans... En savoir plus
05.07.2016
Les autres financements
Les financements des appels à projets portés par la Fondation s’inscrivent en complémentarité d’autres sources de financement, pour des projets pilotes ou d’amorçage, dont... En savoir plus
La recherche
29.01.2017
La Journée Internationale des maladies rares
...La Journée Internationale des maladies rares, le 28 février 2017, aura pour thème la recherche : “With research, possibilities are limitless”.... En savoir plus
15.06.2018
Our Scientific Advisory Board and its “Ad-hoc” specialized Committees
...scientific orientation and modalities of implementation of the annual program to support research. It is appointed by the Board of Directors for a period... En savoir plus
